What is your diagnosis? What is one good thing that happened to you this week?
That is how where my story begins – today.
In doing my prototype testing and scenario validation, I have been getting close with a group of folks. The people change week to week but the introductions are always the same, the explanation of what is to come is always the same. That is comforting in a way. A re-enforcement of some stability or normalcy before the next 2 hours of guided sometimes hard to hear, dialogue. I ask questions, and feel really grateful to get honest answers to my questions.
There is a relief that I have observed from people hearing other people’s stories, however mundane. Even if it is just about what the best meal they ate that week comes. There is a sincere connection from individuals who really do not know each other at all outside of the context of that room.
So again, where is my project my “thing” today? Re-capping from last week when I scrapped the concept of the advent calendar, and decided to test out my book of stories and activities that revolve around adherence to a medication program. I made some scenarios, and I showed the book to a few people and got some feedback that “man, that is a lot of words, and a lot of writing”. Which got me thinking yeah… the people that I have been interviewing and working with for the past 3 weeks who may not be able to get out of bed for a week, and who haven’t even been able to have a job for years might not be into.
When you are in a state of being down, from my personal experience even, I don’t want to do anything. I want to watch TV, I will listen to Radiolab for hours but I can’t read, I don’t want to read. I may want to write but I actually asked the question in my last session how the group felt about “homework” and WOW the reaction was f-no I’m not doing homework.
So that a little bit blew my “fun activities” along with stories as therapy for people with mental illness in west Texas needed to evolve.
How do you get the warmth of the sharing stories with another human in a totally individually packaged analogue package.
Pat, a professor here at AC4D threw out the idea of those talking greeting cards and EUREAKA! I can do this! I can bring the technology to the patient. Rather than relying on the assumption that someone possibly in the middle of nowhere has high-speed wi-fi or even cell phone connection, or even a TV. I can use these little devices to bring a persons story into their home.
So I rush out to destroy some Hallmark “tell me a story” books and recordable photo frames and greeting cards and began figuring out how they worked. The book is quite clever, it works by a series of light sensitive triggers that when exposed will playback a pre-recorded story. A different sentence by turning the page and exposing a new sensor to light by a hold in the side of the page.
The card and the photo frame works by pressing a button to record, and then another button to play.
This week is a week of discovery. I want to introduce to isolated individuals the same feeling of being in a space with others like them. To use these technologies to connect perhaps someone alone in west Texas the opportunity to hear the stories of others from their mouths, with their inflections, stutters, hesitations and emotion to connect them through voice, with a little widget that cost probably 2 bucks to build.
This week is a week of definition of purpose, of order and specificity of content, iterating the medication regimen in the narrative, and finding that carrot that keeps the patient going. That keeps them excited about following through to the end. The book is still my book, just being spoken to the patient rather than the patient having to read the story themselves.
Activities for the week:
- New scenarios with this technology integration.
- Test scenarios.
- Develop a succinct description of my service.
- Plan out content in order or appearance.
- Play with technology.